Other Wellstone Muscular Dystrophy Centers: University of Washington: http://depts.washington.edu/mdcrc/index.html Children’s National Medical Center, Washington DC: http://www.wellstone-dc.org/ University of Iowa: http://www.medicine.uiowa.edu/mdcrc/links.asp University of Rochester: http://www.urmc.rochester.edu/MDCrc/Index.cfm Johns Hopkins University/University of Pennsylvania: http://www.neuro.jhmi.edu/MDCRC/index.html
Patient Advocacy Groups: Muscular Dystrophy Association: http://www.mda.org Parent Project Muscular Dystrophy: http://www.parentprojectmd.org Charley’s Fund: http://www.charleysfund.com Darius Goes West: http://www.dariusgoeswest.org/
Treat-NMD: http://www.treat-nmd.eu/home.php
JAIN Foundation Inc: https://www.jain-foundation.org/index.php
Myotonic Dystrophy Foundation: http://www.myotonic.com/go/mdf/